Showing posts with label Isolation. Show all posts
Showing posts with label Isolation. Show all posts

Tuesday, 26 June 2018

‘Not What I Paid For’: Ableism, Evaluations and the Academic Life

Written by Aparna Nair 
It was that time of year again.
The semester drew to an end and the university sent us enthusiastic email reminders to get students to evaluate our courses. ‘Evaluate NOW’, screamed the emails and signs posted all over campus. This semester, I caught myself instantly deleting that first notification as well as the later more urgent reminders. It was a futile gesture, since I nonetheless made sure to get my classes to fill in the evaluations. But for the first time in my academic career, I was genuinely anxious about the impending possibility of reading an evaluation report. Admittedly, 2017 was uniquely rough. A stressful year teaching seven courses was complicated by personal losses and the low hum of rising anti-immigrant sentiment, making it one of the most difficult of my life. I spent most of the year in a haze of auras, as my epilepsy had become rather recalcitrant.
And then I got these comments in my student evaluations:
I know she is sick. I know that she needs to sometimes bring her support dog into the class. I get it. But she missed classes. I know her TA took over, and that she caught up when she returned. But that is not what I paid for.
I expect more.

I don't want to hear about her illness. She gets paid to do this. WE are paying her to do this. She just needs to stop talking about it.

Even as I type the words, the shame rolls over me.
Evaluations like these raise the question of how academics who openly lay claim to disabled or chronically ill identities should respond when students demonstrate open, almost casual - certainly deliberate - ableism in evaluations. There is nothing in the faculty handbooks, endless trainings and workshops about being confronted with such blatant ableism.
I have lived with epilepsy for a very long time--I was diagnosed at the age of 11. In the deeply traditional and conservative South Asian cultures where I grew up, difference was neither encouraged nor tolerated and conformity was consistently rewarded. As a result of my illness, I experienced isolation, marginalization, derision, stigma and violence. After nearly two decades of concealment, I made a conscious decision to stop pretending that epilepsy was not a serious part of my life. Why, I thought, should I deny something that impinged on my every waking hour in ways that people rarely comprehended? Why did I need to pretend I was ‘normal’ (which my family had desperately wanted me to be) when I knew how illness marked me as different?
So, I ticked off the ‘Yes, I have a disability’ box when I applied for the position I have now, nervous and uncertain as to whether it made me just too marginal for a deeply conservative public university. I lay open claim to an epileptic identity as being part of the reason for my research agenda on disability studies and disability histories in South Asia. I design and conduct workshops on disability in university settings with a wonderful collaborator, and discuss what it means to be a chronically ill faculty member and how to ensure that our classrooms are accommodating and welcoming to disabled and chronically ill students. I publish autoethnographies on epilepsy in South India.
And every semester, my hands still shake when I tell students that I am epileptic in that first introductory session of every course. I strive for a matter-of-fact tone, and tell the classes that while this is not something I would usually share, there may be some times in the semester that my illness becomes uncontrollable and I might need to cancel a class. I then reassure them that this is factored into their syllabus and semester planning and that they will not lose out in terms of learning. Interestingly enough, my disclosure has consistently impelled students to share their own chronic illnesses or disabilities with me in private and I am very grateful for this, since it means I can make accommodations for them and design the class around their needs as well. But I have also come to realise that my initial fears about this act of public disclosure were not unwarranted.
For most of my teaching life, evaluations have always been the space where students expressed themselves anonymously and openly about their professors, without fear of reprisals. Evaluations can be funny and frivolous; trite and tough. Most of us who teach have been embarrassed at some point or the other by what seems to us sometimes unfair, occasionally inapposite ‘bon mots’—from comments on our sartorial choices (‘I loved his t-shirts’ to ‘He wore the same shoes all semester long’) to condemnations of our general affects (‘She is very opinionated! And expects you to agree with her’) to the student’s pondering what on earth we were doing in our chosen professions (‘I don’t know why he is teaching, clearly he is happier in the lab’). But evaluations can also be serious and help us adapt our teaching styles, our evaluation methods, our reading assignments and other pedagogical choices. I learnt that students liked blogging, but that they did not think that they had enough time to work on their exercises in class. I learnt that students will always have mixed opinions about group work, but that it is nonetheless useful. I learnt how the complicated courses I taught on race and empire and disability were received emotively and intellectually, and those responses were profoundly important in developing my courses in certain directions. So I had accustomed myself to opening my evaluations with the certainty that I would find useful information on my course design and assessments along with the more frivolous comments.
But I am at a loss as to how to respond to the casual ableism in my student evaluations, ableism which will become a part of every job application, every promotion and tenure application. It will be misinterpreted and decontextualised by committees and administrations and will eat into my teaching accomplishments or my research portfolio. For many people who see these comments, my epilepsy will circumscribe my abilities and skills.
How then do we respond to ableism in evaluations? I must admit, I am left only with questions. One option is to mention nothing of epilepsy at all in my classes. But it feels dishonest and just wrong.
So I can tell you how I have learnt to cope. I try to focus on the students with whom I seem to be connecting, the ones whose work is wonderful, who challenge me in class and whose presence in my classes is a true joy. And there are many of them. I have begun conducting my own evaluations in class, asking students what worked and what did not—and these are often more detailed feedback for adapting my pedagogical approach in different classes.
My methods do not always work. I sometimes feel like Sisyphus, and wonder if there is any point. I wonder if the affective (and physical) toll of being ‘out of the closet’ in academia is worth it at all.
And, in the meantime, it is more than a month since my evaluation reports were published. I still have not clicked on the link that takes me to the report.
Maybe next month? Or maybe not.
About the Author

Aparna Nair currently works as Assistant Professor in History of Science at the University of Oklahoma-Norman. She teaches on disability, race, empire, medicine and public health and her research explores colonialism and disability in British India as well as the meanings of chronic illness in modern south India. She blogs at disabilitystories.com.

Sunday, 2 July 2017

The Fog

Written by Ian 
Trigger warning - mention of suicidal thoughts.
Cutting through the fog is what I needed to do.
The lone scholar myth persists and is still the model of an academic. Individual achievement and “genius” is what the system is geared to reward. The relentless academic tournament where only a few “win” is exhausting and takes a toll on mental health, especially when things aren’t healthily competitive, but hyper-competitive as they are now.
I bought into the lone “genius” scholar model. Probably both consciously and subconsciously. Academia can be isolating and has been for me.
My internal dialog has an outsize influence. It has the credibility of a scientist working to falsify any positive idea I might have. The negative, harsh voice is one I would never apply to anyone else. Connecting to others can be challenging partly because depressive mood is not something I want to spread. However, luckily, I do have a few close friends—whom I would take a bullet for—to open up to, although none of whom I speak with enough.
There’s pain in the fog; a longing for light to cut through or for me to find a way to part it, if only temporarily.
At its thickest, there are two solutions to dealing with the fog. Waiting for the fog to abate, even partially. And there have been times when it feels oppressive and functionally no different from being dead. Suicidal thoughts crept in. I never had means to act on these thoughts, and had one motivation to not carry through: those good friends and family. I would wish to get hit by a bus or have some other fatal accident befall me.
Having these thoughts obviously didn’t help my work.
The fog thickens in times of uncertainty.
I’ve had to come back from that oppressive fog that began six years ago, when I nearly didn’t go on. That was a time I somehow waited out the worst. A time when taking any steps, any actions, seemed futile.
Coming back from that has been a big accomplishment, and I feel shows strength. All through this I kept going, kept learning, and was kind and patient with myself. I found new ways of connecting to people, mainly through Twitter. I started talking openly about depression and mental illness, particularly as it affects academics. I started writing about science too, beyond the technical writing, by guest writing on other blogs. I’m learning to be an editor. I’ve decided I want to step away from the lab bench, which has recently happened. As of this writing, I don’t have anything full time lined up. This latest uncertainty is a test of the network I have built up of close friends and acquaintances, and a test of my ability to go after new opportunities and reach through the fog to ask for help and connect to the wider world. How much will the fog close in this time?
Depression, even when well managed and apparently in the background, seems likely to be with me the rest of my life. The fog can thin and even disappear for a time, but never seems far away. Though even when it’s away, some of the habits developed in the fog’s isolation remain.
I fear stepping into another situation like academia. My next career step is one where I hope I can still further science, education, critical thinking, and the public’s connection to stories of science. Ultimately I hope it’s a career that’s better for my mental health than academia has been, by allowing me to connect more.
There are systemic and cultural changes to academia that can and should be called for like truly preparing PhDs and postdocs for careers beyond the tenure track. But for individuals coping with depression or another mental illness, I encourage them to find someone outside the fog to talk to. To build a support network (like Chronically Academic) of close friends/family and acquaintances, one at a time. Starting with a therapist is fine too. Medications may help lift the fog enough to feel and act normally as well. Resilience is easier when there are supportive people that are visible and accessible. That may include your advisor and other mentors—always build up a network of more than one mentor. Mentors can be anyone that positively influences you or your learning and having people to go to for specific things makes you less isolated and I believe learning from others, or just learning new ways of thinking, can help treat depression (it’s not *that* simple, but it has helped).
Navigating through life with a fog of depression over the brain isn’t easy, but it can also make those managing depression mentally tough and more resilient than may be apparent to even them.
About the Author

Ian is a plant scientist, science writer, and editor who recently transitioned out of academia. His science writing can be seen on his blog, The Quiet Branches. He can be found on Twitter at @IHStreet.