Showing posts with label Support Network. Show all posts
Showing posts with label Support Network. Show all posts

Saturday, 20 October 2018

Working from Home: Issues and Advice

Written by Calum Carson 
Recent developments in communications technology and a greater recognition of the importance of a healthy work-life balance has led to a wider number of workers across the world voluntarily working from home. For those experiencing chronic illness and/or disability, however, such working arrangements are an unavoidable reality rather than a choice. For individuals in this position studying and working within a profession such as academia, where long periods of independent research and a lack of day to day working routine are already commonplace, there are a number of issues that can emerge through such experiences that it is important to discuss.
From my own perspective, the involuntarily imposition of home working arrangements is something that I have spent the past eighteen months coming to terms with, following the beginning of an on-going chronic back injury at the beginning of January 2017 (worst New Year’s gift EVER). This coincided with the beginning of the second year of my PhD following a six-month suspension for a research internship. I had spent the first year of my studies working 9-5 in the communal office space provided for doctoral researchers in my department, a routine I found easy to stick to after spending six years working 9-5 before returning to research for my Masters/PhD. My own particular injury essentially turned my back into what I liken to a cross between Goldilocks and an extremely moody teenager, with seating/standing/walking conditions etc. having to be “just right” in order for it not to tie itself into painful knots. This makes working from the rigid confines of a desk in an office extremely difficult, and has made developing a new working routine from home essential.
In a number of ways, the two key issues inherent in working from home are the same as those within any professional working environment: making sure routines and systems are in place so that you can work well and maintaining functioning professional relationships with colleagues to facilitate those routines and systems. The key difference for most home workers, however, is that the relationship aspect of work shifts from being comfortable with others to being comfortable with working alone and with yourself. This can be more difficult when home working has been imposed by an individual’s circumstances through a chronic illness or disability, rather than a specific choice deliberately made to better support family life and/or a work-life balance.
Given this, it is no surprise that a number of issues can manifest for someone finding themselves in this position. Feelings of loneliness and frustration about one’s circumstances are perhaps the most obvious, with the necessity of working from home making some depressed and anxious about missing out on working with academic colleagues. For some like myself it can also have a detrimental impact on work itself, with more distractions at hand and the lack of motivation produced by the lack of anyone around you doing the same thing.
Fortunately, there are a number of ways that working from home can be made more palatable in the twenty-first century. The same technological advances that have led to an increase in home working can be similarly utilised to provide home workers with more social and colleague-to-colleague interaction, for example through Skype “Shut up and Write” sessions and virtual coffee breaks. For those who can work for short periods outside of the home, meeting up with colleagues at a nearby cafĂ© or pub to work together for a couple of hours can be a welcome break from the confines of your typical routine, and the few-office-hours nature of academia can mean that arranging for others to work with you from your home are easier to arrange than they would be in many other sectors.
Setting clear boundaries between “work life” and “home life” are even more essential when your place of work is also your home, too: for example, by designating official start and end times to the working day, giving yourself a decent break for lunch (preferably outside of the house), and if possible ensuring that you get out in the fresh air at regular intervals (even if it’s just on the front door step). If you’re lucky enough to have a home office, use this more than any other room so that you can mentally leave your work in that room once the day is over.
While these may seem like very small and obvious pieces of advice, I can speak from personal experience that they really do help: working from home when you have no choice but to do so can be rough going at times, but there are a large number of things you can do to make things easier (and to avoid becoming a hermit): if you’ve got any advice of your own for us home workers, do please post it below!
About the Author

Calum Carson is a third year PhD candidate at Leeds University Business School, whose research explores the business case for the Living Wage amidst the continued growth of precarious work in the UK today.

Sunday, 2 July 2017

The Fog

Written by Ian 
Trigger warning - mention of suicidal thoughts.
Cutting through the fog is what I needed to do.
The lone scholar myth persists and is still the model of an academic. Individual achievement and “genius” is what the system is geared to reward. The relentless academic tournament where only a few “win” is exhausting and takes a toll on mental health, especially when things aren’t healthily competitive, but hyper-competitive as they are now.
I bought into the lone “genius” scholar model. Probably both consciously and subconsciously. Academia can be isolating and has been for me.
My internal dialog has an outsize influence. It has the credibility of a scientist working to falsify any positive idea I might have. The negative, harsh voice is one I would never apply to anyone else. Connecting to others can be challenging partly because depressive mood is not something I want to spread. However, luckily, I do have a few close friends—whom I would take a bullet for—to open up to, although none of whom I speak with enough.
There’s pain in the fog; a longing for light to cut through or for me to find a way to part it, if only temporarily.
At its thickest, there are two solutions to dealing with the fog. Waiting for the fog to abate, even partially. And there have been times when it feels oppressive and functionally no different from being dead. Suicidal thoughts crept in. I never had means to act on these thoughts, and had one motivation to not carry through: those good friends and family. I would wish to get hit by a bus or have some other fatal accident befall me.
Having these thoughts obviously didn’t help my work.
The fog thickens in times of uncertainty.
I’ve had to come back from that oppressive fog that began six years ago, when I nearly didn’t go on. That was a time I somehow waited out the worst. A time when taking any steps, any actions, seemed futile.
Coming back from that has been a big accomplishment, and I feel shows strength. All through this I kept going, kept learning, and was kind and patient with myself. I found new ways of connecting to people, mainly through Twitter. I started talking openly about depression and mental illness, particularly as it affects academics. I started writing about science too, beyond the technical writing, by guest writing on other blogs. I’m learning to be an editor. I’ve decided I want to step away from the lab bench, which has recently happened. As of this writing, I don’t have anything full time lined up. This latest uncertainty is a test of the network I have built up of close friends and acquaintances, and a test of my ability to go after new opportunities and reach through the fog to ask for help and connect to the wider world. How much will the fog close in this time?
Depression, even when well managed and apparently in the background, seems likely to be with me the rest of my life. The fog can thin and even disappear for a time, but never seems far away. Though even when it’s away, some of the habits developed in the fog’s isolation remain.
I fear stepping into another situation like academia. My next career step is one where I hope I can still further science, education, critical thinking, and the public’s connection to stories of science. Ultimately I hope it’s a career that’s better for my mental health than academia has been, by allowing me to connect more.
There are systemic and cultural changes to academia that can and should be called for like truly preparing PhDs and postdocs for careers beyond the tenure track. But for individuals coping with depression or another mental illness, I encourage them to find someone outside the fog to talk to. To build a support network (like Chronically Academic) of close friends/family and acquaintances, one at a time. Starting with a therapist is fine too. Medications may help lift the fog enough to feel and act normally as well. Resilience is easier when there are supportive people that are visible and accessible. That may include your advisor and other mentors—always build up a network of more than one mentor. Mentors can be anyone that positively influences you or your learning and having people to go to for specific things makes you less isolated and I believe learning from others, or just learning new ways of thinking, can help treat depression (it’s not *that* simple, but it has helped).
Navigating through life with a fog of depression over the brain isn’t easy, but it can also make those managing depression mentally tough and more resilient than may be apparent to even them.
About the Author

Ian is a plant scientist, science writer, and editor who recently transitioned out of academia. His science writing can be seen on his blog, The Quiet Branches. He can be found on Twitter at @IHStreet.

Sunday, 30 October 2016

An Undergraduate Perspective on Recovery

Written by Krishna Udaiwal

In the winter semester of my second year undergrad for philosophy/biology major, I underwent a period of uncontrolled pressure and a breaking point leading to severe depression & social anxiety, as well as cancelling the entire semester before the exams. It was a horrible experience, one which I wouldn’t prescribe to my worst enemies. During the worst of it, there was a breakdown event, loss of interest, severe self-deprecation and quarantine-like isolation. Fortunately, I took the seemingly irrational, but courageous, step to book an appointment with a doctor. Unfortunately, it was over 3 weeks after the initial month of agonizing despair, where hounding social anxiety tried to convince me to cancel the appointment (luckily, I hated using the phone or going outside even more). My decision wasn’t irrational and was the best course of action possible. It was the lowest consecutive time for me, where hearsay cases of micromanaging students ‘faking’ mental health conditions for advantage/grades (in my opinion displaced competitiveness from instructors) and my own lack of self-confidence/ineptitude initially deferred me from making that appointment. When learning of diseases & conditions the first lesson is to never self-diagnose, which is equally true for self-un-diagnosing mental health; you inherently cannot make an accurate judgment. It is essential to speak with a trustworthy source.
Once I spoke to the doctor (or General Practitioner, GP, in mental health lingo) it was obvious to them I needed medical help due to physical & mental signs, although some may not present any signs at all. The signs at my stage were tremors (without any stimulants), inability to look directly at someone, muffled speech, inability to focus or calm myself (these are self-observations post facto). GPs are, as they ought be, limited in declaring specific diagnosis & treatments in a single visit (for long-term diagnoses) as there may be false-positive cases (like hearsay cases) as mentioned before. As such, I was referred to a psychiatrist for in-depth analysis of my condition. For the immediate alleviation of my symptoms, I was conveyor-ed through a passive regiment of steps to recovery including counsellor visits to mitigate immediate risk and the psychiatrist diagnosis for long-term specific severity analysis. In addition, on-going appointments with my GP were booked immediately to ensure my condition did not break me off from seeking help, as very likely. Lastly, I was scheduled to speak with an academic counsellor to contemplate my options regarding my semester (they also immediately understood the gravity of my condition and weren’t intrusive, likely being used to such). Further medical treatments were thereafter discussed with the GP in consequent talks.

My GP was closely linked with the university healthcare network, so a passive & systematic approach was in-place to handle my situation. I could only hope to have a similar regiment should I have approached another unlinked GP, where an active search for information would be left up to the distressed student. Very likely, the student may have a better chance by breaking down the issue into personal rehabilitation & academic recovery.

Personal rehabilitation must necessarily take precedence, as the self-development requires a ready mind, which mental health issues take away. Self-development is necessary & core to studying at University. For my preservation, the actions undertaken were recurring GP appointments, counsellor visits, psychiatrist diagnosis and an appointment with the academic counsellor. The first three were part of personal rehabilitation and I would like to briefly summarize why they were necessary. Recurring GP appointments are, concurrent with the counsellor & psychiatrist appointments, for making the overall decisions in regards to personal rehabilitation options from mental health diagnoses. The treatment options usually include cognitive/speech therapy and medication. With each mental health disorder (anorexia, OCD, depression, etc) there are a multitude of different possibilities, so cognitive therapy and/or medication may work better alone or in combination. The psychiatrist is a specialized doctor who has the training and knowledge to accurately make mental health diagnoses, and to a much greater extent than a GP. Thus, GPs seek a psychiatrist’s diagnosis & recommendations, to determine if cognitive therapy and/or medication may be best. Any treatment prescribed depends on the patient’s approval, where patients may be against medication in some cases. In the case of depression, various medications target different neurotransmitters against potential chemical imbalance. Unfortunately, as causes vary and understanding is lacking, non-chemical imbalance causing depression leads to failed treatment by medication, off-putting many patients due to side-effects. Often, the timeframe towards making a diagnosis may be long, therefore a counsellor is needed to relieve pressure and defuse immediate thoughts of self-harm. A counsellor however is not a doctor nor is allowed to diagnose or prescribe therapies/medications to patients, but is very helpful towards the ongoing recovery. In summary, all three are usually needed for higher chances of rehabilitation.

Regarding academic recovery, it depends on your faculty, where different options may be present including cancelling the semester, deferring the exam (& shifting weight all to the exam), or continuing under variable accommodations discussed as per need. Unfortunately, my perspective is limited, as described previously, to what my academic counsellor allowed. I would not expect much creativity from academic counsellors however, as personal experiences & interactions highlight that they aren’t allowed to do much for undergrads anymore, more so within larger faculties.

Lastly, I want to mention during therapy, I learned that ‘suicidal thoughts weren’t normally present’ in healthy individuals. After partial results from treatment, it was apparently true. In addition, the rate of self-loathing thoughts decreased exponentially, as well as their severity, to metaphoric levels between bully-laughed at within a class of students to taking a vacation-nap on an isolated beach. Sure, the isolated beach may lead to some anxiety of unknown lurkers away from the beachfront, but only to such an amount that probability rules in relaxation. Since the hazardous time, I have also experienced that those vile thoughts can be relieved from socializing with trusted compatriots, which may be lacked within the isolated student. The academic environment where learning is secondary to undergrad hierarchy (GPA -> grants, graduate programs, competitive jobs, self-confidence to seek help/opportunities from instructors) reinforces that notion for introverts. After all, it is random chance that guides forming a friendship between two individuals.

I sincerely hope, if you are undergoing suicidal thoughts, you will talk to someone you can trust or a telephone helpline. Please don’t speak to former abusers, whom you have a history with no matter how optimistic. If you feel self-deprecating, seek a volunteer organization where people appreciate you so you can regain some of your spirit, this being my method towards personal well-being post-therapy. If you’re in a temporary crisis mode, or over-stressed, change your objectives to personal well-being immediately! An assignment or test can be deferred or re-weighted, but a breakdown has lasting consequences. You are not the first to be in crisis, and the faculty must accommodate.

If you feel of no consequence, let me know and I can try to brainwas—I mean encourage you towards some social causes I believe could use additional help (after some semblance of recovery of course). For instance, international agriculture, medical aid, food miles, local communities, cycling and botany.

 About the Author
Krishna Udaiwal, BSc, affected 2nd year of undergrad, dealing with the complications one at a time. Still impassioned & always reading on molecular life of plants and miRNA, aiming for MSc. Promoting science communication on Twitter, and always happy to help peers.

Thursday, 18 August 2016

The Importance of Support

Written by Hazel 
I was asked to write about coping strategies that I have used as a PhD student with a chronic illness.  I have had mixed experiences as someone who was diagnosed at the beginning of my 3rd year, which made my funding situation complicated but also left me struggling to adjust to my abilities being different.
  1. Accept the support that is available

    I disclosed to the Disability Service and my Department as soon as I had a diagnosis.  At my university in the UK you can disclose confidentially to the Disability Service if you do not want your Department to be made aware of your disability but in my case it was obvious I was ill so I decided it was to my advantage to make my supervisor aware of my condition.  I met with a disability advisor at my university who explained the sort of support available.  I had to provide a letter from my GP stating my diagnosis so that a needs assessment could be carried out at the local assessment centre.  The assessor was really kind and helpful and asked about how my disability affected my work and what help I needed.  At this point, despite being diagnosed with a chronic illness, I thought I would bounce back in a few months so I was reluctant to accept much help.  Several months later when I was really struggling I had to email my assessor and ask for further support which she approved and the university put in place. 
    My first coping strategy as a PhD student is to disclose to the Disability Service at your university and accept the support that is available to you.  For me that included daily taxis back to my house and a printer to allow me to work from home on the particularly bad days.  I was fortunate that a time came when my symptoms lessened and I could walk far enough to use public transport but if my health deteriorates in the future I wouldn’t hesitate to ask for further support.
  2. Find someone to talk to from within academia

    As part of my support package I got weekly mentoring with a specialist disability mentor at my university.  My mentor works with students with a wide range of conditions and from different disciplines.  She has helped me decide how to approach various issues with my supervisor and develop the skills to be productive in a short amount of time.  I suspect I would have quit my PhD without her support.
    My second coping strategy is to find someone you can talk to who understands disability and academia.  Maybe your university has a specialist disability mentor but if not I would suggest approaching the staff disability network or staff equality office and asking if they can connect you up with a mentor.
  3. Be clear and concise about adjustments

    Around 6 months after I got ill I asked to be referred to Occupational Health.  Many companies have an Occupational Health group who are responsible for everything from Display Screen Equipment assessments (i.e. making sure you are sitting properly at your desk) to ensuring staff travelling abroad get the right immunisations.  They will usually have a specialist GP whose job it is to report on the reasonable adjustments needed by staff in order to carry out their job.  Having a report from Occupational Health sent directly to my supervisor made it clear to him what I needed from the Department.
    My third coping strategy is to learn to be clear and concise about your needs.  You don’t need to disclose the exact nature of your disability every time, for example, that you book on to a course even though in my experience people will ask.  You are the expert on the adjustments you need not them so focus on politely stating your needs and don’t get drawn into justifying yourself.
  4. Hold on to your support network

    This might seem like a glib thing to say as I understand that some people find personal relationships difficult at the best of times but it is important.  When I had to reduce my working hours because of my health it was tempting to cut out everything else so that I could focus all of the energy that I had on my studies.  In reality you don’t get a PhD without making some sacrifices so my social life is a fraction of what it used to be but I have kept weekends as my own with one day for rest and laundry and one day for socialising.  The friends worth holding on to have adapted to my need to go out for lunch rather than dinner.  They understand that I can’t walk far or stand around in the cold for ages and that I might need a lie down after travelling to their house.  This small amount of balance between getting enough work done to succeed and socialising in order to be a functioning human being has kept me going through the worse periods of illness knowing that when the latest infection passes there are people who will be pleased to see me on my terms.  It also helps to stop me from being impulsive when I’m feeling isolated and bored which generally leads to doing far too much and feeling far too ill to work for several days.  Skype and FaceTime are also a great way of connecting with family and friends when you don’t have the energy to leave the house.
    My final coping mechanism is to regularly make time for socialising, or whatever it is that you find makes you happy and helps you process your thoughts and feelings.
 About the Author
Hazel believes that academia should become more diverse and that the institutions funding research need to review how they support individuals with disabilities and chronic illnesses who have the skills to become great researchers but who need reasonable adjustments and flexibility to achieve that goal.  Hazel became part of Chronically Academic to raise the profile of this community with a view to campaigning for changes to the culture in academia and the funding opportunities available.